(founded in September 2005)
E-mail address: maruta20420@yahoo.co.jp
|
(founded in September 2005)
E-mail address: maruta20420@yahoo.co.jp |
Office Address:
c/o Dr. Shintaro Nishio, 5-22-29
Kami-Imaizumi, Ebina-City,
Kanagawa 243-0431, Japan.
Board Members:
Dr. Shintaro Nishio, President
Dr. Hiroshi Maruta, Vice President & Manager
Dr. Lan Kluwe, Vice President
Dr. Kanki Komiyama, Financial Manager
Our Major Goals:
1. Supporting NF research (both basic and clinical) which would lead to the discovery and
development of NF therapeutics
2. Promoting any other campaigns that would be helpful for improving the quality of life (QOL) of NF patients
3. Supporting the communication efforts to appeal the current situation of NF patients to
the Japanese society/community
4. Promoting the human rights movement to abolish from the Japanese society any discrimination and
bias against NF patients and their families.
5. Promoting the bio-medical education of both NF clinicians and patients
6. Encouraging the unity and friendly exchange among NF patients
7. Maintaining a close contact and collaboration with overseas NF supporting orgnizations
such as Texas NF Foundation, NFInc and NF2crew.
Currently 6 non-board members are also working voluntarily for this NPO.
However, the majority of these people are either NF patients or their parents,
and according to the Japanese NPO (non-profit organization) law,
we will not disclose any of their names, simply because they are liable
to the nasty discrimination by the rest of the Japanese society (non-NF physically healthy,
but highly biased people).
NF Journal (Japanese) : http://http://daikon-tom.la.coocan.jp/nfj/nfj_index.html
NF Journal (English) : http://http://daikon-tom.la.coocan.jp/nfj/2005_12_eng.htm
Copyright (C) 2005 hiroshi.maruta(ORIGINAL) DAIKON_TOMiHTMLj Modify 2005. Nov. 5 Ver 1.0 Modify 2006. Jul. 6 Ver 1.1 Modify 2013. Oct.12 Ver 1.2